20+ Barth Syndrome Advocates Urged Congress to Hold FDA Accountable to Conduct Fair & Appropriate Review of Potential Treatment

Advocates participate in 109 meetings during Rare Disease Week
Arturo Strengthens Leadership Team with the Addition of Donnie Millar and Thom Keyes

Bringing extensive tech startup experience, both leaders join as the insurtech company scales into new markets that stand to benefit from advanced property intelligence solutions
Arturo Taps Insurtech Titan Jeff Taylor as Chief Strategy Officer

DENVER (February 22, 2024) - Arturo, the property intelligence company that delivers portfolio-wide underwriting, risk, claims and catastrophe-driven event insights, announces the appointment of Jeffrey Taylor as Chief Strategy Officer. This appointment comes as Arturo p...
Families and Advocates Rally in Washington, DC Urging FDA to Conduct Fair & Appropriate Review of Potential Treatment for Barth Syndrome

WASHINGTON, DC - The Barth Syndrome Foundation (BSF), the only patient advocacy organization dedicated to Barth syndrome and saving lives around the world through education, advances in treatment and finding a cure, will be leading a delegation of families and individual...
LA Governor Jeff Landry Speaks in Support of the Jones Act and AOWFA at OMSA’s Winter Conference

NEW ORLEANS, LA – February 1, 2024 -  The Offshore Marine Service Association (OMSA) hosted Louisiana Governor Jeff Landry at its annual winter conference on Wednesday, January 31st. Governor Landry spoke with OMSA members about the importance of protecting the American ...
Sip, Savor & Save Lives – Mark your Calendars for Isabella Santos Foundation’s First Signature Event of the Season – A Speakeasy Soiree

Enjoy a 1920s-style evening with signature cocktails, culinary experiences, music, a live auction and a special announcement from executive director, Erin Santos-Primis.CHARLOTTE - January 23, 2024 – The Isabella Santos Foundation (ISF) is excited to announce its first s...
AvenueWest Earns the Corporate Housing Providers Association (CHPA) Company Accreditation

Further distinguishing the company as a leader in the corporate housing industry, this accreditation is a testament to AvenueWest’s commitment to providing world class service and accommodations.
Isabella Santos Foundation Welcomes New Team Members to Drive Impactful Change in 2024

Growth continues for ISF with new VP of Marketing & Communications, Hailey Rorie, new Marketing Manager, Julie D’Amanda, and new Creative Director Kat Baab.  CHARLOTTE - January 17, 2024 - Isabella Santos Foundation (ISF), a 501(c)3 childhood cancer foundation dedica...
The Barth Syndrome Foundation Delivers Petition to FDA Advocating for a Fair, Equitable and Appropriate Review of the Only Potential Treatment for Barth Syndrome

In 2 Months, Petition Garnered Nearly 20,000 Signatures from Individuals in All 50 U.S. States 
OMSA Announces New Additions to Board of Directors and 2024 Leadership

The Board’s growth and diversity reflects expanding U.S. offshore energy industry and a doubling down on OMSA’s roots
20+ Barth Syndrome Advocates Urged Congress to Hold FDA Accountable to Conduct Fair & Appropriate Review of Potential Treatment

Advocates participate in 109 meetings during Rare Disease Week
Arturo Strengthens Leadership Team with the Addition of Donnie Millar and Thom Keyes

Bringing extensive tech startup experience, both leaders join as the insurtech company scales into new markets that stand to benefit from advanced property intelligence solutions
Arturo Taps Insurtech Titan Jeff Taylor as Chief Strategy Officer

DENVER (February 22, 2024) - Arturo, the property intelligence company that delivers portfolio-wide underwriting, risk, claims and catastrophe-driven event insights, announces the appointment of Jeffrey Taylor as Chief Strategy Officer. This appointment comes as Arturo p...
Families and Advocates Rally in Washington, DC Urging FDA to Conduct Fair & Appropriate Review of Potential Treatment for Barth Syndrome

WASHINGTON, DC - The Barth Syndrome Foundation (BSF), the only patient advocacy organization dedicated to Barth syndrome and saving lives around the world through education, advances in treatment and finding a cure, will be leading a delegation of families and individual...
LA Governor Jeff Landry Speaks in Support of the Jones Act and AOWFA at OMSA’s Winter Conference

NEW ORLEANS, LA – February 1, 2024 -  The Offshore Marine Service Association (OMSA) hosted Louisiana Governor Jeff Landry at its annual winter conference on Wednesday, January 31st. Governor Landry spoke with OMSA members about the importance of protecting the American ...
Sip, Savor & Save Lives – Mark your Calendars for Isabella Santos Foundation’s First Signature Event of the Season – A Speakeasy Soiree

Enjoy a 1920s-style evening with signature cocktails, culinary experiences, music, a live auction and a special announcement from executive director, Erin Santos-Primis.CHARLOTTE - January 23, 2024 – The Isabella Santos Foundation (ISF) is excited to announce its first s...
AvenueWest Earns the Corporate Housing Providers Association (CHPA) Company Accreditation

Further distinguishing the company as a leader in the corporate housing industry, this accreditation is a testament to AvenueWest’s commitment to providing world class service and accommodations.
Isabella Santos Foundation Welcomes New Team Members to Drive Impactful Change in 2024

Growth continues for ISF with new VP of Marketing & Communications, Hailey Rorie, new Marketing Manager, Julie D’Amanda, and new Creative Director Kat Baab.  CHARLOTTE - January 17, 2024 - Isabella Santos Foundation (ISF), a 501(c)3 childhood cancer foundation dedica...
The Barth Syndrome Foundation Delivers Petition to FDA Advocating for a Fair, Equitable and Appropriate Review of the Only Potential Treatment for Barth Syndrome

In 2 Months, Petition Garnered Nearly 20,000 Signatures from Individuals in All 50 U.S. States 

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